{"ok":true,"n":9,"firstAt":"2026-09-09T00:00:00","lastAt":"2026-10-01T00:00:00","channels":{"advocate":4,"direct":5},"headline":{"n":8,"of":"answers about the person's own illness","method":"The ranking, the three questions, the clinician count and the ranking by sex are computed from answers about the person's own illness. Answers a parent or caregiver gave about a child are read only as their own group, by stratum, and that group is withheld until it holds 11 answers."},"ranking":[{"burden":"forgone","rankedFirstBy":6,"rankedLastBy":0,"meanRank":1.75},{"burden":"oop","rankedFirstBy":1,"rankedLastBy":1,"meanRank":2.75},{"burden":"time","rankedFirstBy":1,"rankedLastBy":0,"meanRank":2.75},{"burden":"work","rankedFirstBy":0,"rankedLastBy":3,"meanRank":3.38},{"burden":"unpaid","rankedFirstBy":0,"rankedLastBy":4,"meanRank":4.38}],"rankingBySex":{"min":11,"stated":8,"notStated":0,"groups":[],"withheldGroups":2,"withheldResponses":8,"why":"The Federal Sprint Lead for the Invisible Illness track asked every team, on 26 August 2026, to be intentional about sex differences where relevant.","method":"Each group is the same count of the same answers as the total above it, computed by the same function. A sex group holding fewer than 11 responses is withheld here rather than served and hidden later, because a cross-tabulation narrows the group twice. Nothing is weighted, imputed or extrapolated."},"rankingByStratum":{"min":11,"counts":{"onset-not-stated":4},"groups":[],"withheldGroups":4,"withheldResponses":9,"method":"Each stratum is the same count of the same answers as the total, computed by the same function. A stratum holding fewer than 11 responses is withheld here rather than served, its count as well as its ranking. Rows collected before the instrument asked (version 2026-10-01.1) are \"age at onset not stated\", never assumed adult."},"unasked":{"forgone":4,"unpaid":2,"all-asked":1,"time":1},"lead":{"forgone":4,"work":2,"oop":1,"time":1},"decide":{"patients":5,"reader":2,"clinicians":1},"clinicians":{"n":8,"median":7,"mean":6.9,"max":15},"coverage":{"age":{"not stated":3,"fewer than 11, not shown":6},"sex":{"fewer than 11, not shown":9},"insurance":{"not stated":3,"fewer than 11, not shown":6},"region":{"not stated":3,"fewer than 11, not shown":6},"state":{"not stated":3,"fewer than 11, not shown":6},"stage":{"not stated":3,"fewer than 11, not shown":6},"respondent":{"not stated":4,"fewer than 11, not shown":5},"onset_age":{"not stated":4,"fewer than 11, not shown":5},"diagnosis_age":{"not stated":4,"fewer than 11, not shown":5}},"coverageWithheld":{"age":{"cells":4,"responses":6,"min":11},"sex":{"cells":2,"responses":9,"min":11},"insurance":{"cells":6,"responses":6,"min":11},"region":{"cells":4,"responses":6,"min":11},"state":{"cells":5,"responses":6,"min":11},"stage":{"cells":2,"responses":6,"min":11},"respondent":{"cells":2,"responses":5,"min":11},"onset_age":{"cells":5,"responses":5,"min":11},"diagnosis_age":{"cells":5,"responses":5,"min":11}},"smallCellMin":11,"sentencesHeld":5,"method":"Every figure is a count of responses exactly as entered. No weighting scheme of ours, no imputation, no extrapolation to a population. This is a self-selected sample, recruited through the channels listed, and must be read as one. Any answer to a question about the person (age, sex, coverage, region, state, stage, who is answering, the ages at onset and diagnosis) held by fewer than 11 responses is not shown: it is counted in the line \"fewer than 11, not shown\" and never named. Dates are published as the day, never the time.","firstOn":"2026-09-09","lastOn":"2026-10-01","teamTests":0,"fold":{"hit":true,"rows":9,"foldedAt":"2026-10-01T00:00:00"},"senders":4,"answers":9,"submissions":9,"senderBasis":"senders","denominator":"Distinct senders, counted outside the row: one network on one day, counted once, never a verified person. A room on one shared connection counts as one sender, so this number runs low, never high. \"submissions\" is how many were sent.","deprecated":{"n":"answers"}}