{"ok":true,"generatedOn":"2026-10-02","tableVersion":"2026-09-09.1","smallCellMin":11,"method":"Every count here is what people actually sent through this tool, rolled up and nothing more: no weighting, no imputation, no extrapolation to a population. The sample is self-selected. A cell holding fewer than 11 answers is not shown with its number; it is counted in one line so the totals still add up. Dates are the day, never the time. The burden figures are the price table's own rows, shown apart and never added to anyone's ledger.","conditions":{"rows":[{"id":"long-covid","label":"Long COVID","icd10cm":"U09.9","figure":{"rowId":"meps2022-longcovid-excess-total","point":4098,"low":1619,"high":6578,"year":"2022","basis":"total_expenditure","figureKind":"excess","figureKindLabel":"the EXTRA that was spent in a year on the care of an adult with long COVID, over a comparable adult who never had COVID: by every payer combined","population":"U.S. civilian noninstitutionalized adults 18 and older; 17,119 survey respondents standing for about 254 million adults, of whom 1,196 reported long COVID and 8,939 reported never having had COVID","sourceTitle":"Neba R, Pedaprolu LS, Neba B, Sambamoorthi U. Long COVID Is Associated with Excess Direct Healthcare Expenditures Among Adults in the United States. Healthcare (Basel) 2025;13(21):2704, a peer-reviewed secondary analysis of MEPS 2022, NOT a government publication","sourceUrl":"https://pmc.ncbi.nlm.nih.gov/articles/PMC12607343/","agencyDisplay":"AHRQ MEPS","government":false,"publisherNote":"A peer-reviewed secondary analysis of the federal survey, not a federal publication. The data underneath is AHRQ MEPS 2022; the estimate is the authors’, and we say so wherever we print it."},"reason":null,"definitionCaveat":"Long COVID here is self-reported: the person said yes to having had COVID and yes to symptoms lasting three months or more. It is not a U09.9 diagnosis, so it includes people who never got one.","nationalContext":null},{"id":"heart-disease","label":"Heart disease","icd10cm":null,"figure":{"rowId":"meps2022-benchmark-heart-disease","point":4900,"low":null,"high":null,"year":"2022","basis":"total_expenditure","figureKind":"condition_attributed","figureKindLabel":"what was spent TREATING this condition in a year, per adult being treated for it","population":"U.S. civilian noninstitutionalized adults 18+ treated for heart disease (7.8 percent of adults)","sourceTitle":"AHRQ, MEPS Statistical Brief #562: Healthcare Expenditures for Heart Disease among Adults Aged 18 and Older, 2022 (July 2025)","sourceUrl":"https://meps.ahrq.gov/data_files/publications/st562/stat562.pdf","agencyDisplay":"AHRQ MEPS","government":true,"publisherNote":"Published by AHRQ, the federal agency that runs the survey."},"reason":null,"definitionCaveat":"Spending on this condition is heavily right-skewed: most adults treated for it spend far less than the mean, and a few spend enormously more. AHRQ publishes the median for the same adults too, and it is shown next to the mean.","nationalContext":null},{"id":"diabetes","label":"Diabetes","icd10cm":null,"figure":{"rowId":"meps2022-benchmark-diabetes","point":5810,"low":null,"high":null,"year":"2021-2022","basis":"total_expenditure","figureKind":"condition_attributed","figureKindLabel":"what was spent TREATING this condition in a year, per adult being treated for it","population":"U.S. civilian noninstitutionalized adults 18+ treated for diabetes (10.2 percent, ~26.3 million)","sourceTitle":"AHRQ, MEPS Statistical Brief #568: Healthcare Expenditures for Diabetes Among Adults Aged 18 and Older, 2021-2022 (December 2025)","sourceUrl":"https://meps.ahrq.gov/data_files/publications/st568/stat568.pdf","agencyDisplay":"AHRQ MEPS","government":true,"publisherNote":"Published by AHRQ, the federal agency that runs the survey."},"reason":null,"definitionCaveat":"AHRQ states these estimates exclude lost productivity and exclude complication care such as related emergency and hospital use, so they are not comparable to broader cost-of-illness estimates.","nationalContext":null},{"id":"me-cfs","label":"ME/CFS (chronic fatigue syndrome)","icd10cm":"G93.32","figure":null,"reason":"This table carries no published federal figure for a year with ME/CFS. The diagnosis code exists; the price does not.","definitionCaveat":null,"nationalContext":{"text":"CDC puts what ME/CFS costs the whole U.S. economy at about $18 to $51 billion a year in medical costs and lost income: a total for the country, not a year for one person, so it is never added to your ledger.","source":"CDC, ME/CFS Basics (page last updated 10 May 2024); the same range in NCHS Data Brief No. 488, December 2023","url":"https://www.cdc.gov/me-cfs/about/index.html"}},{"id":"pots-dysautonomia","label":"POTS and dysautonomia","icd10cm":"G90.A","figure":null,"reason":"This table carries no published federal figure for a year with POTS. Every test on the way to that diagnosis is priced here; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"fibromyalgia","label":"Fibromyalgia","icd10cm":"M79.7","figure":null,"reason":"This table carries no published federal figure for a year with fibromyalgia.","definitionCaveat":null,"nationalContext":null},{"id":"endometriosis","label":"Endometriosis","icd10cm":"N80","figure":null,"reason":"This table carries no published federal figure for a year with endometriosis.","definitionCaveat":null,"nationalContext":null},{"id":"sickle-cell","label":"Sickle cell disease","icd10cm":"D57","figure":null,"reason":"This table carries no published federal figure for a year with sickle cell disease.","definitionCaveat":null,"nationalContext":null},{"id":"undiagnosed","label":"Still looking for a diagnosis","icd10cm":null,"figure":null,"reason":"There is no federal figure for a year spent looking. That is the gap this tool exists to count: the visits and tests below are priced, the search itself is not.","definitionCaveat":null,"nationalContext":null},{"id":"lyme","label":"Lyme disease","icd10cm":"A69.2","figure":null,"reason":"This table carries no published federal figure for a year with Lyme disease. A study led by CDC scientists published what a reported case cost from its start to its end; that is shown apart below, because one case is not one year.","definitionCaveat":"The published cost follows reported cases from onset to conclusion in four high-incidence states, so it does not describe symptoms that last after treatment. CDC calls those post-treatment Lyme disease syndrome (PTLDS) and says: “CDC discourages use of the term Chronic Lyme Disease because it implies that prolonged symptoms are caused by an ongoing bacterial infection when, in fact, the cause is not currently known.” Care for lasting symptoms is what the itemized ledger is for.","nationalContext":null},{"id":"lupus","label":"Lupus (systemic lupus erythematosus)","icd10cm":"M32","figure":null,"reason":"This table carries no published federal figure for a year with lupus.","definitionCaveat":null,"nationalContext":null},{"id":"multiple-sclerosis","label":"Multiple sclerosis","icd10cm":"G35","figure":null,"reason":"This table carries no published federal figure for a year with multiple sclerosis.","definitionCaveat":"The code shown is the category heading. In the FY2026 and FY2027 code files the billable codes sit under it, by type (relapsing-remitting, primary progressive, secondary progressive, unspecified).","nationalContext":null},{"id":"migraine","label":"Migraine","icd10cm":"G43","figure":null,"reason":"This table carries no published federal figure for a year with migraine.","definitionCaveat":null,"nationalContext":null},{"id":"ibd","label":"Inflammatory bowel disease (Crohn’s and ulcerative colitis)","icd10cm":null,"figure":null,"reason":"This table carries no published federal figure for a year with inflammatory bowel disease.","definitionCaveat":null,"nationalContext":null},{"id":"interstitial-cystitis","label":"Interstitial cystitis (bladder pain syndrome)","icd10cm":"N30.1","figure":null,"reason":"This table carries no published federal figure for a year with interstitial cystitis (bladder pain syndrome).","definitionCaveat":null,"nationalContext":null},{"id":"celiac","label":"Celiac disease","icd10cm":"K90.0","figure":null,"reason":"This table carries no published federal figure for a year with celiac disease.","definitionCaveat":null,"nationalContext":null},{"id":"irritable-bowel-syndrome","label":"Irritable bowel syndrome","icd10cm":"K58","figure":null,"reason":"This table carries no published federal figure for a year with irritable bowel syndrome. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"rheumatoid-arthritis","label":"Rheumatoid arthritis","icd10cm":"M06.9","figure":null,"reason":"This table carries no published federal figure for a year with rheumatoid arthritis. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"ehlers-danlos-syndromes","label":"Ehlers-Danlos syndromes","icd10cm":"Q79.6","figure":null,"reason":"This table carries no published federal figure for a year with ehlers-Danlos syndromes. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"complex-regional-pain-syndrome","label":"Complex regional pain syndrome (type I)","icd10cm":"G90.5","figure":null,"reason":"This table carries no published federal figure for a year with complex regional pain syndrome (type I). Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"ankylosing-spondylitis","label":"Ankylosing spondylitis","icd10cm":"M45","figure":null,"reason":"This table carries no published federal figure for a year with ankylosing spondylitis. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"psoriatic-arthritis","label":"Psoriatic arthritis","icd10cm":"L40.5","figure":null,"reason":"This table carries no published federal figure for a year with psoriatic arthritis. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"sjogrens-disease","label":"Sjögren’s disease","icd10cm":"M35.0","figure":null,"reason":"This table carries no published federal figure for a year with Sjögren’s disease. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"hashimotos-thyroiditis","label":"Hashimoto’s thyroiditis","icd10cm":"E06.3","figure":null,"reason":"This table carries no published federal figure for a year with Hashimoto’s thyroiditis. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"graves-disease","label":"Graves’ disease","icd10cm":"E05.0","figure":null,"reason":"This table carries no published federal figure for a year with Graves’ disease. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"addisons-disease","label":"Addison’s disease","icd10cm":"E27.1","figure":null,"reason":"This table carries no published federal figure for a year with Addison’s disease. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"chronic-kidney-disease","label":"Chronic kidney disease","icd10cm":"N18","figure":null,"reason":"This table carries no published federal figure for a year with chronic kidney disease. How many people have it is published, and shown apart below; it is never added to your ledger.","definitionCaveat":null,"nationalContext":null},{"id":"epilepsy","label":"Epilepsy","icd10cm":"G40","figure":null,"reason":"This table carries no published federal figure for a year with epilepsy. How many people have it is published, and shown apart below; it is never added to your ledger.","definitionCaveat":null,"nationalContext":null},{"id":"narcolepsy","label":"Narcolepsy","icd10cm":"G47.4","figure":null,"reason":"This table carries no published federal figure for a year with narcolepsy. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"idiopathic-intracranial-hypertension","label":"Idiopathic intracranial hypertension","icd10cm":"G93.2","figure":null,"reason":"This table carries no published federal figure for a year with idiopathic intracranial hypertension. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"chiari-malformation","label":"Chiari malformation","icd10cm":"Q07.0","figure":null,"reason":"This table carries no published federal figure for a year with Chiari malformation. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"mast-cell-activation-syndrome","label":"Mast cell activation syndrome","icd10cm":"D89.4","figure":null,"reason":"This table carries no published federal figure for a year with mast cell activation syndrome. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"gastroparesis","label":"Gastroparesis","icd10cm":"K31.84","figure":null,"reason":"This table carries no published federal figure for a year with gastroparesis. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"vulvodynia","label":"Vulvodynia","icd10cm":"N94.81","figure":null,"reason":"This table carries no published federal figure for a year with vulvodynia. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"polycystic-ovary-syndrome","label":"Polycystic ovary syndrome","icd10cm":"E28.2","figure":null,"reason":"This table carries no published federal figure for a year with polycystic ovary syndrome. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"myasthenia-gravis","label":"Myasthenia gravis","icd10cm":"G70.0","figure":null,"reason":"This table carries no published federal figure for a year with myasthenia gravis. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"trigeminal-neuralgia","label":"Trigeminal neuralgia","icd10cm":"G50.0","figure":null,"reason":"This table carries no published federal figure for a year with trigeminal neuralgia. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"occipital-neuralgia","label":"Occipital neuralgia","icd10cm":"M54.81","figure":null,"reason":"This table carries no published federal figure for a year with occipital neuralgia. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"cluster-headache","label":"Cluster headache","icd10cm":"G44.0","figure":null,"reason":"This table carries no published federal figure for a year with cluster headache. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"tinnitus","label":"Tinnitus","icd10cm":"H93.1","figure":null,"reason":"This table carries no published federal figure for a year with tinnitus. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"menieres-disease","label":"Ménière’s disease","icd10cm":"H81.0","figure":null,"reason":"This table carries no published federal figure for a year with Ménière’s disease. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"chronic-pain-syndrome","label":"Chronic pain syndrome","icd10cm":"G89.4","figure":null,"reason":"This table carries no published federal figure for a year with chronic pain syndrome. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"peripheral-neuropathy","label":"Peripheral neuropathy (polyneuropathy)","icd10cm":"G62.9","figure":null,"reason":"This table carries no published federal figure for a year with peripheral neuropathy (polyneuropathy). Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"raynauds-syndrome","label":"Raynaud’s syndrome","icd10cm":"I73.0","figure":null,"reason":"This table carries no published federal figure for a year with Raynaud’s syndrome. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"systemic-sclerosis","label":"Systemic sclerosis (scleroderma)","icd10cm":"M34","figure":null,"reason":"This table carries no published federal figure for a year with systemic sclerosis (scleroderma). Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"dermatomyositis-and-polymyositis","label":"Dermatomyositis and polymyositis","icd10cm":"M33","figure":null,"reason":"This table carries no published federal figure for a year with dermatomyositis and polymyositis. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"hidradenitis-suppurativa","label":"Hidradenitis suppurativa","icd10cm":"L73.2","figure":null,"reason":"This table carries no published federal figure for a year with hidradenitis suppurativa. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"eosinophilic-esophagitis","label":"Eosinophilic esophagitis","icd10cm":"K20.0","figure":null,"reason":"This table carries no published federal figure for a year with eosinophilic esophagitis. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"microscopic-colitis","label":"Microscopic colitis","icd10cm":"K52.83","figure":null,"reason":"This table carries no published federal figure for a year with microscopic colitis. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"sarcoidosis","label":"Sarcoidosis","icd10cm":"D86","figure":null,"reason":"This table carries no published federal figure for a year with sarcoidosis. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"autoimmune-hepatitis","label":"Autoimmune hepatitis","icd10cm":"K75.4","figure":null,"reason":"This table carries no published federal figure for a year with autoimmune hepatitis. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"primary-biliary-cholangitis","label":"Primary biliary cholangitis","icd10cm":"K74.3","figure":null,"reason":"This table carries no published federal figure for a year with primary biliary cholangitis. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"depression","label":"Depression","icd10cm":"F32","figure":null,"reason":"This table carries no published federal figure for a year with depression. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"generalized-anxiety-disorder","label":"Generalized anxiety disorder","icd10cm":"F41.1","figure":null,"reason":"This table carries no published federal figure for a year with generalized anxiety disorder. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"post-traumatic-stress-disorder","label":"Post-traumatic stress disorder","icd10cm":"F43.1","figure":null,"reason":"This table carries no published federal figure for a year with post-traumatic stress disorder. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"adhd","label":"ADHD","icd10cm":"F90","figure":null,"reason":"This table carries no published federal figure for a year with ADHD. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"autism","label":"Autism","icd10cm":"F84.0","figure":null,"reason":"This table carries no published federal figure for a year with autism. How many people have it is published, and shown apart below; it is never added to your ledger.","definitionCaveat":null,"nationalContext":null},{"id":"chronic-hepatitis-c","label":"Chronic hepatitis C","icd10cm":"B18.2","figure":null,"reason":"This table carries no published federal figure for a year with chronic hepatitis C. How many people have it is published, and shown apart below; it is never added to your ledger.","definitionCaveat":null,"nationalContext":null},{"id":"obstructive-sleep-apnea","label":"Obstructive sleep apnea","icd10cm":"G47.33","figure":null,"reason":"This table carries no published federal figure for a year with obstructive sleep apnea. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"restless-legs-syndrome","label":"Restless legs syndrome","icd10cm":"G25.81","figure":null,"reason":"This table carries no published federal figure for a year with restless legs syndrome. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"temporomandibular-joint-disorders","label":"Temporomandibular joint disorders","icd10cm":"M26.6","figure":null,"reason":"This table carries no published federal figure for a year with temporomandibular joint disorders. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"polymyalgia-rheumatica","label":"Polymyalgia rheumatica","icd10cm":"M35.3","figure":null,"reason":"This table carries no published federal figure for a year with polymyalgia rheumatica. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"behcets-disease","label":"Behçet’s disease","icd10cm":"M35.2","figure":null,"reason":"This table carries no published federal figure for a year with Behçet’s disease. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"neuromyelitis-optica","label":"Neuromyelitis optica","icd10cm":"G36.0","figure":null,"reason":"This table carries no published federal figure for a year with neuromyelitis optica. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"chronic-inflammatory-demyelinating-polyneuropathy","label":"Chronic inflammatory demyelinating polyneuropathy","icd10cm":"G61.81","figure":null,"reason":"This table carries no published federal figure for a year with chronic inflammatory demyelinating polyneuropathy. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"lichen-sclerosus","label":"Lichen sclerosus","icd10cm":"L90.0","figure":null,"reason":"This table carries no published federal figure for a year with lichen sclerosus. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"premenstrual-dysphoric-disorder","label":"Premenstrual dysphoric disorder","icd10cm":"F32.81","figure":null,"reason":"This table carries no published federal figure for a year with premenstrual dysphoric disorder. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"pernicious-anemia","label":"Pernicious anemia","icd10cm":"D51.0","figure":null,"reason":"This table carries no published federal figure for a year with pernicious anemia. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"hemochromatosis","label":"Hemochromatosis","icd10cm":"E83.11","figure":null,"reason":"This table carries no published federal figure for a year with hemochromatosis. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"hypermobility-syndrome","label":"Hypermobility syndrome","icd10cm":"M35.7","figure":null,"reason":"This table carries no published federal figure for a year with hypermobility syndrome. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"hypothyroidism","label":"Hypothyroidism","icd10cm":"E03.9","figure":null,"reason":"This table carries no published federal figure for a year with hypothyroidism. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null},{"id":"asthma","label":"Asthma","icd10cm":"J45","figure":null,"reason":"This table carries no published federal figure for a year with asthma. Every visit, test and procedure on the way is priced line by line; the year is not.","definitionCaveat":null,"nationalContext":null}],"noFigureQualifier":"We have not found a published federal annual figure for this condition. That is a statement about what we could find, not a claim that none exists anywhere. If you know of one, say so and we will price it and cite it.","note":"Each figure is shown apart and is never added to anyone’s ledger. Figures of different kinds (excess over a comparable person, spending attributed to the condition) are not ranked against each other."},"uncounted":{"burdens":[{"id":"time","label":"Time spent: visits, waiting, travel"},{"id":"work","label":"Paid work missed"},{"id":"unpaid","label":"Unpaid care from family or friends"},{"id":"forgone","label":"Care you went without"}],"survey":{"n":9,"submissions":9,"answers":9,"senders":4,"senderBasis":"senders","deprecated":{"n":"answers"},"firstOn":"2026-09-09","lastOn":"2026-10-01","rankedAnswers":8,"rankedAnswersOf":"answers about the person's own illness","ranking":[{"burden":"forgone","label":"Care you went without","meanRank":1.75,"rankedFirstBy":null,"countedByFederalFiles":false},{"burden":"oop","label":"Money paid out of pocket","meanRank":2.75,"rankedFirstBy":null,"countedByFederalFiles":true},{"burden":"time","label":"Time spent: visits, waiting, travel","meanRank":2.75,"rankedFirstBy":null,"countedByFederalFiles":false},{"burden":"work","label":"Paid work missed","meanRank":3.38,"rankedFirstBy":null,"countedByFederalFiles":false},{"burden":"unpaid","label":"Unpaid care from family or friends","meanRank":4.38,"rankedFirstBy":null,"countedByFederalFiles":false}],"readAs":"signal"},"gap":{"respondents":0,"submissions":0,"reports":0,"senders":0,"senderBasis":"none","deprecated":{"respondents":"reports"},"categories":[{"id":"care-not-sought","label":"Care you needed and did not seek","unit":"occasions","reporting":0},{"id":"care-denied","label":"Care you asked for and were refused","unit":"occasions","reporting":0},{"id":"dismissed","label":"Times you were told it was nothing","unit":"times","reporting":0},{"id":"wrong-track","label":"Care aimed at the wrong thing","unit":"months","reporting":0},{"id":"time-searching","label":"Time spent searching rather than being treated","unit":"months","reporting":0},{"id":"life-lost","label":"What the search cost you outside of medicine","unit":"occurrences","reporting":0}]}},"disputes":{"sends":5,"browserFigurePairs":5,"senders":5,"deprecated":{"senders":"browserFigurePairs"},"firstOn":"2026-09-10","lastOn":"2026-10-01","bySchedule":[{"key":"cms-pfs","label":"Medicare Physician Fee Schedule (PFS)","agency":"CMS","figuresPublished":171,"shown":false,"sends":null,"browserFigurePairs":null,"senders":null,"right":null,"wrong":null,"withAmount":null,"figuresNamed":null,"firstOn":null,"lastOn":null},{"key":"cms-clfs","label":"Clinical Laboratory Fee Schedule (CLFS)","agency":"CMS","figuresPublished":81,"sends":0,"browserFigurePairs":0,"senders":0,"right":0,"wrong":0,"withAmount":0,"figuresNamed":0,"firstOn":null,"lastOn":null,"shown":true},{"key":"cms-opps","label":"Hospital Outpatient Prospective Payment System (OPPS)","agency":"CMS","figuresPublished":3,"sends":0,"browserFigurePairs":0,"senders":0,"right":0,"wrong":0,"withAmount":0,"figuresNamed":0,"firstOn":null,"lastOn":null,"shown":true},{"key":"cms-program","label":"Medicare premiums, deductibles and Part D amounts","agency":"CMS","figuresPublished":2,"sends":0,"browserFigurePairs":0,"senders":0,"right":0,"wrong":0,"withAmount":0,"figuresNamed":0,"firstOn":null,"lastOn":null,"shown":true},{"key":"ahrq-meps","label":"Medical Expenditure Panel Survey (MEPS)","agency":"AHRQ","figuresPublished":10,"sends":0,"browserFigurePairs":0,"senders":0,"right":0,"wrong":0,"withAmount":0,"figuresNamed":0,"firstOn":null,"lastOn":null,"shown":true},{"key":"ahrq-hcup","label":"Healthcare Cost and Utilization Project (HCUP)","agency":"AHRQ","figuresPublished":2,"sends":0,"browserFigurePairs":0,"senders":0,"right":0,"wrong":0,"withAmount":0,"figuresNamed":0,"firstOn":null,"lastOn":null,"shown":true},{"key":"bls","label":"Earnings and wage series","agency":"BLS","figuresPublished":2,"sends":0,"browserFigurePairs":0,"senders":0,"right":0,"wrong":0,"withAmount":0,"figuresNamed":0,"firstOn":null,"lastOn":null,"shown":true},{"key":"gsa","label":"Privately owned vehicle mileage rate","agency":"GSA","figuresPublished":1,"sends":0,"browserFigurePairs":0,"senders":0,"right":0,"wrong":0,"withAmount":0,"figuresNamed":0,"firstOn":null,"lastOn":null,"shown":true},{"key":"research","label":"Peer-reviewed analysis of a federal survey","agency":"research","figuresPublished":2,"sends":0,"browserFigurePairs":0,"senders":0,"right":0,"wrong":0,"withAmount":0,"figuresNamed":0,"firstOn":null,"lastOn":null,"shown":true}],"byAgency":[{"key":"CMS","label":"Centers for Medicare & Medicaid Services","agency":"CMS","figuresPublished":257,"shown":false,"sends":null,"browserFigurePairs":null,"senders":null,"right":null,"wrong":null,"withAmount":null,"figuresNamed":null,"firstOn":null,"lastOn":null,"office":"Center for Medicare, Hospital and Ambulatory Policy Group, which sets the Physician Fee Schedule, the Clinical Laboratory Fee Schedule and the hospital outpatient payment rates","officeUrl":"https://www.cms.gov/about-cms/who-we-are/leadership/center-medicare"},{"key":"AHRQ","label":"Agency for Healthcare Research and Quality","agency":"AHRQ","figuresPublished":12,"sends":0,"browserFigurePairs":0,"senders":0,"right":0,"wrong":0,"withAmount":0,"figuresNamed":0,"firstOn":null,"lastOn":null,"shown":true,"office":"Center for Financing, Access, and Cost Trends (MEPS); Center for Quality Improvement and Patient Safety, Division of Healthcare Data and Analytics (HCUP)","officeUrl":"https://www.ahrq.gov/cpi/centers/cfact/index.html"},{"key":"BLS","label":"U.S. Bureau of Labor Statistics","agency":"BLS","figuresPublished":2,"sends":0,"browserFigurePairs":0,"senders":0,"right":0,"wrong":0,"withAmount":0,"figuresNamed":0,"firstOn":null,"lastOn":null,"shown":true,"office":"Office of Employment and Unemployment Statistics (Current Population Survey earnings; Occupational Employment and Wage Statistics)","officeUrl":"https://www.bls.gov/oes/contact.htm"},{"key":"GSA","label":"U.S. General Services Administration","agency":"GSA","figuresPublished":1,"sends":0,"browserFigurePairs":0,"senders":0,"right":0,"wrong":0,"withAmount":0,"figuresNamed":0,"firstOn":null,"lastOn":null,"shown":true,"office":"Office of Government-wide Policy, Office of Travel, Relocation, Transportation, and Mail Policy, which sets the mileage rate for privately owned vehicles","officeUrl":"https://www.gsa.gov/policy-regulations/policy/travel-management-policy-overview"},{"key":"research","label":"Published research (not a federal publication)","agency":"research","figuresPublished":2,"sends":0,"browserFigurePairs":0,"senders":0,"right":0,"wrong":0,"withAmount":0,"figuresNamed":0,"firstOn":null,"lastOn":null,"shown":true,"office":"The authors of the paper. A dispute here is about their analysis of a federal survey, not about an agency file.","officeUrl":""}],"withheld":{"bySchedule":{"cells":1,"sends":5,"min":11,"label":"fewer than 11, not shown"},"byAgency":{"cells":1,"sends":5,"min":11,"label":"fewer than 11, not shown"}},"rule":"A cell holding fewer than 11 corrections is not shown: its counts and dates are withheld, and its corrections are counted in the line \"fewer than 11, not shown\"."},"agencies":[{"key":"CMS","name":"Centers for Medicare & Medicaid Services","office":"Center for Medicare, Hospital and Ambulatory Policy Group, which sets the Physician Fee Schedule, the Clinical Laboratory Fee Schedule and the hospital outpatient payment rates","officeUrl":"https://www.cms.gov/about-cms/who-we-are/leadership/center-medicare","sources":[{"title":"CMS, Center for Medicare leadership page","url":"https://www.cms.gov/about-cms/who-we-are/leadership/center-medicare","year":"2026","quote":"director of the Hospital & Ambulatory Policy Group (HAPG), tasked with establishing, maintaining, and updating scope of benefits, conditions of payment, and payment rates for the inpatient and outpatient hospital"},{"title":"Federal Register, Medicare Clinical Laboratory Fee Schedule annual public meeting notice (FR Doc. 2026-08511)","url":"https://www.govinfo.gov/content/pkg/FR-2026-05-01/html/2026-08511.htm","year":"2026","quote":"The Division of Ambulatory Services in the CMS Center for Medicare is coordinating the CLFS Annual Public Meeting registration."}]},{"key":"AHRQ","name":"Agency for Healthcare Research and Quality","office":"Center for Financing, Access, and Cost Trends (MEPS); Center for Quality Improvement and Patient Safety, Division of Healthcare Data and Analytics (HCUP)","officeUrl":"https://www.ahrq.gov/cpi/centers/cfact/index.html","sources":[{"title":"AHRQ, MEPS HC-251 2023 Full Year Consolidated Data File documentation","url":"https://meps.ahrq.gov/data_stats/download_data/pufs/h251/h251doc.pdf","year":"2025","quote":"Agency for Healthcare Research and Quality, Center for Financing, Access, and Cost Trends"},{"title":"AHRQ, Center for Financing, Access, and Cost Trends","url":"https://www.ahrq.gov/cpi/centers/cfact/index.html","year":"2025","quote":"Oversees health sector surveys such as medical expenditure surveys"},{"title":"AHRQ, Center for Quality Improvement and Patient Safety","url":"https://www.ahrq.gov/cpi/centers/cquips/index.html","year":"2026","quote":"Healthcare Data and Analytics Division Director: Pamela L. Owens, Ph.D. Healthcare Cost and Utilization Project (HCUP) Program"},{"title":"AHRQ, HCUP Statistical Brief #319","url":"https://hcup-us.ahrq.gov/reports/statbriefs/sb319-nonventilator-hospital-acquired-pneumonia.pdf","year":"2026","quote":"Director, Division of Healthcare Data and Analytics (DHDA) Center for Quality Improvement and Patient Safety (CQuIPS)"}]},{"key":"BLS","name":"U.S. Bureau of Labor Statistics","office":"Office of Employment and Unemployment Statistics (Current Population Survey earnings; Occupational Employment and Wage Statistics)","officeUrl":"https://www.bls.gov/oes/contact.htm","sources":[{"title":"BLS, Occupational Employment and Wage Statistics contact","url":"https://www.bls.gov/oes/contact.htm","year":"2026","quote":"Occupational Employment and Wage Statistics Office of Employment and Unemployment Statistics"},{"title":"BLS, Current Population Survey contact","url":"https://www.bls.gov/cps/contact.htm","year":"2026","quote":"Current Population Survey Office of Employment and Unemployment Statistics"}]},{"key":"GSA","name":"U.S. General Services Administration","office":"Office of Government-wide Policy, Office of Travel, Relocation, Transportation, and Mail Policy, which sets the mileage rate for privately owned vehicles","officeUrl":"https://www.gsa.gov/policy-regulations/policy/travel-management-policy-overview","sources":[{"title":"GSA, Travel management policy overview","url":"https://www.gsa.gov/policy-regulations/policy/travel-management-policy-overview","year":"2026","quote":"Located within the Office of Government-wide Policy, the Office of Travel, Relocation, Transportation, and Mail Policy sets travel policy"},{"title":"Federal Register, GSA notice (FR Doc. 2025-24148)","url":"https://www.govinfo.gov/content/pkg/FR-2026-01-02/html/2025-24148.htm","year":"2026","quote":"AGENCY: Office of Government-Wide Policy (OGP), General Services Administration"}]},{"key":"research","name":"Published research (not a federal publication)","office":"The authors of the paper. A dispute here is about their analysis of a federal survey, not about an agency file.","officeUrl":"","sources":[]}],"levers":[{"id":"no-surprises-good-faith-estimate","title":"The No Surprises Act good-faith estimate","what":"A person who is uninsured or pays for their own care is owed a good-faith estimate, and a bill at least $400 over it can be disputed through patient-provider dispute resolution.","today":"Every Wrong a person sends names the one published figure it is about, and may carry what they say they actually paid. The register counts how many carry an amount, by agency and fee schedule; the amounts are never summed or printed.","larger":"With enough answers per service, CMS could see which services people most often say cost them far more than the published federal amount, and look there first for estimates that are missing or wrong. That comparison has not been made.","sources":[{"title":"45 CFR 149.620, patient-provider dispute resolution (govinfo, CFR annual edition)","url":"https://www.govinfo.gov/link/cfr/45/149?sectionnum=620&year=mostrecent","year":"2025","quote":"Substantially in excess means, with respect to the total billed charges by a provider or facility, an amount that is at least $400 more than the total amount of expected charges listed on the good faith estimate"},{"title":"CMS, Dispute a medical bill","url":"https://www.cms.gov/medical-bill-rights/help/dispute-a-bill","year":"2026","quote":"Did your provider charge at least $400 more than your good faith estimate? You may be eligible to dispute your bill."}]},{"id":"hospital-price-transparency","title":"Hospital price transparency","what":"Every hospital must publish its standard charges for all items and services online, in a machine-readable file that carries the billing code for each.","today":"255 of the 274 published figures in this tool carry the CPT or HCPCS code the federal schedule prices, the same codes a hospital file must list. A correction is bound to that code and that row.","larger":"An agency could set what people say they paid beside the hospital’s posted charge and the Medicare amount for the same code, and see where the three part ways, service by service.","sources":[{"title":"45 CFR 180.50, requirements for making public hospital standard charges (govinfo)","url":"https://www.govinfo.gov/link/cfr/45/180?sectionnum=50&year=mostrecent","year":"2025","quote":"A hospital must establish, update, and make public a list of all standard charges for all items and services online"},{"title":"CMS, Hospital Price Transparency","url":"https://www.cms.gov/priorities/key-initiatives/hospital-price-transparency","year":"2026","quote":"As a comprehensive machine-readable file with all items and services"}]},{"id":"nih-recover","title":"NIH RECOVER, the long COVID research initiative","what":"Congress gave NIH $1.15 billion in December 2020 to study the long-term effects of COVID-19; NIH runs that work as the RECOVER Initiative.","today":"People searching for a diagnosis rank five burdens, and four of them (time, paid work missed, unpaid care, care gone without) are in no expenditure file. The ranking is published with its N, and by sex only once a group holds 11 answers.","larger":"A ranking with a large N, read by sex and by age at onset, would give researchers a patient-ranked list of which long COVID burdens to measure. Today the N is too small to support that.","sources":[{"title":"RECOVER Initiative, Funding","url":"https://recovercovid.org/funding","year":"2026","quote":"In December 2020, Congress appropriated $1.15 billion to the NIH to study the long-term effects of COVID-19, including Long COVID."},{"title":"Challenges and Opportunities in Long COVID Research, Immunity (peer-reviewed), PMC11210969","url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC11210969/","year":"2024","quote":"In December 2020, the U.S. Congress directed the NIH to devote $1.15 billion to studying LC"}]},{"id":"hhs-long-covid-burden","title":"HHS on the burden long COVID puts on people","what":"The 2022 presidential memorandum asked HHS to advance understanding of the health and socioeconomic burdens on individuals with long COVID, and HHS names reduced work and economic burden today.","today":"The ledger prices a person’s own visits and tests from federal files, and counts, apart from any dollar, the care they went without, the time and the work lost.","larger":"HHS could report the burden on individuals as people rank it, beside the published spending figures, instead of spending alone. That needs many more answers than the register holds.","sources":[{"title":"Memorandum on Addressing the Long-Term Effects of COVID-19, Federal Register (FR Doc. 2022-07756)","url":"https://www.govinfo.gov/content/pkg/FR-2022-04-08/html/2022-07756.htm","year":"2022","quote":"advance our understanding of the health and socioeconomic burdens on individuals affected by long COVID"},{"title":"HHS, Invisible Illness: Long COVID","url":"https://www.hhs.gov/longcovid/index.html","year":"2026","quote":"Long COVID contributes to reduced workforce participation, disability, and significant economic burden, with national costs estimated in the hundreds of billions of dollars annually."}]},{"id":"lyme-cost-of-illness","title":"The cost of Lyme disease, as HHS’s own reports asked for it","what":"HHS’s Tick-Borne Disease Working Group asked for studies of the total cost of illness of tick-borne diseases, beginning with Lyme, and the Lyme human-centered design report made for the HHS LymeX effort recommends a cost-of-care resource.","today":"The two Lyme blood tests are priced from the CMS Clinical Laboratory Fee Schedule: CPT 86618 at $17.03 and CPT 86617 at $15.49, each with its file and row. Lyme is one of the conditions in section 1.","larger":"With Lyme searches itemized line by line and enough of them, HHS could set the cost of a Lyme diagnostic search, as people lived it, beside the published per-case estimates.","sources":[{"title":"Tick-Borne Disease Working Group, 2018 Report to Congress, Recommendation 3.3","url":"https://health.gov/sites/oash/files/2025-01/tbdwg-report-to-congress-2018.pdf","year":"2018","quote":"Support economic studies and activities to estimate the total cost of illness associated with tick-borne diseases in the United States, beginning first with Lyme disease and including both financial and societal impacts."},{"title":"Lyme Disease Human-Centered Design Report, Coforma for the HHS LymeX effort","url":"https://www.hhs.gov/sites/default/files/healthplus-lyme-disease-hcd-report.pdf","year":"2021","quote":"Develop and maintain a cost-of-care resource that estimates the total cost of types of Lyme care"}]}]}